Patient engagement in gene therapy MasterClass - EU edition

21-22 May, 2025

Considerations for the USA and Europe

This interactive 2-day online master course equips rofessionals with the strategies, tools, and insights to strengthen patient centered approaches in gene therapy development, access, and communication.

21-22 May, 2025, Virtual

Time Zone: UTC/GMT+1 /CET

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Key learnings

Understand

Understand the global gene therapy landscape & pipeline

Gain

Gain insights into patient perspectives, needs, and challenges

Explore

Explore strategies for meaningful patient engagement

FDA, EMA and HTA

Understand the ever increasing importance of patient engagement at FDA, EMA and HTA level

Navigate

Navigate barriers in access, affordability, and policy

Trusted by over 17,000 delegates across leading companies

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Overview

Gene therapy is reshaping medicine. More than 15 gene therapies are already approved in the US and the EU, and a growing number in development. Despite recent disappointments and major challenges becoming more evident, expectations still run high. Importantly, further progress also highly depends on effective patient engagement. This interactive 2-day online master course equips rofessionals with the strategies, tools, and insights to strengthen patient centered approaches in gene therapy development, access, and communication.

#masterclass #glceurope #pharma #globaltraining #patientengagement #patientadvocacy #genetherapy

Trainer

Philipp von Gallwitz

Managing Partner
admedicum Patient Driven Solutions

Philipp is co-founder and Managing Partner of admedicum Patient Driven Solutions www.admedicum.com, an international expert group for patient engagement.admedicum supports patient organisations, biotech, pharma and medtech companies across the globe with understanding patient needs and achieving better outcomes and access to treatment and care by establishing sustainable value-adding collaboration between patients and industry.
He also co-founded the not-for profit Partners4Patients Foundation www.partners4patients.org, supporting patient organisations lacking sufficient resources to run projects on their own. He is a patient representative of International CDKL5 Family Alliance and a EUPATI Patient Expert fellow. As a volunteer he co-founded 2 parent initiatives for inclusive work and living. In this context he also founded and ran INGA gGmbH, a not-for-profit care service provider and acted as their CEO in 2023 and 2024.
Philipp is a registered Attorney at Law in Germany. Prior to co-founding admedicum in 2016, Philipp gathered almost 20 years of management experience in R&D-based pharma in various management functions, mostly close to clinical development. He lived and worked in Spain, Ecuador, Mexico, the US and Germany and has year-long experience in Japan.

Charlene Son Rigby

Charlene Son Rigby is the Chief Executive Officer of Global Genes. She has spent her career building organizations at the intersection of data, technology, and life sciences. Charlene led the merger between Global Genes and RARE-X, a health technology nonprofit. She was previously Chief Business Officer at Fabric Genomics and held executive roles at enterprise software and genomics companies, including Oracle and Doubletwist. She started her career in neuroscience research at Roche. When Charlenes daughter was diagnosed with a rare genetic disease, she co-founded the STXBP1 Foundation. She is committed to finding a cure for her daughters disorder. Charlenes unplanned connection between her personal life and profession has helped push forward the search for a cure for her daughter and kids like her, and given her work deeper meaning. Charlene is a Termeer Scholar. She holds a B.A. in Human Biology from Stanford University and an M.B.A. from the Haas School of Business at U.C. Berkeley.

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Reasons to attend a masterclass

Practical knowledge

Venture into undiscovered territories and gain inspiration through collaboration

Interactivity

Boost your professional skills by directly engaging with domain experts

World-class trainers

Gain value and learn from the best instructors

Networking

Build a top-notch community and advance your career

Who should attend img WHO SHOULD ATTEND

Professionals from pharma & biotech (R&D, Medical Affairs, Market Access, Patient Affairs)

Patient representatives and advocates

Regulatory & HTA professionals

Researchers & HCPs involved in gene therapy

Who should attend img WHO SHOULD ATTEND

-Professionals from pharma & biotech (R&D, Medical Affairs, Market Access, Patient Affairs)

-Patient representatives and advocates

-Regulatory & HTA professionals

-Researchers & HCPs involved in gene therapy

Ticket options for you

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*minimum of 10 participants

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Testimonial

Our success stories

"High attention to detail in course content and very well delivered"

Simon Halsey

Product Development Manager
Essentra Packaging
United Kingdom

Our success stories

"Very good training led by two knowledgeable and open experts. Excellent insight given on many complex topics. Interactive and highly useful"

Aurelie Vivicorsi

USP PD Team Manager
Celonic AG
Switzerland

Our success stories

"Great course, impressed with the knowledge of the trainers and ability to answer wide variety of questions!"

Emilia Szwej

Manager, Senior Investigator
MT Sword Laboratories (BMS)
Germany

About GLC

Global Leadership Conferences began as an ambitious dream by three founders ten years ago. Today its an international series of interactive events, exploring the hottest topics in critical fields. Each year, thousands of professionals join us to challenge the status quo and learn innovative ways to create new solutions in Finance, Pharmaceutical, HR, Health & Safety, and Energy.

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